New to the forum

[lp2]

I am brand new to the forum. My daughter who is 6 has recently been diagnosed with prolonged qt and an enlarged aorta. I would love any info, etc from anyone in a similar situation. She also has many other medical diagnoses that complicate the whole thing including turner syndrome, high functioning autism, a possible seizure disorder, ADHD, and possibly OCD.

[cmooredavis]

We do have another family in the group with prolonged qt: Cache is the son's name. Their blog is at: http://lissamousemm.blogspot.com/

Good luck with everything!

[Ellie's Army]

I have two cousins that have the Long QT syndrome. They also had seizures when they were little that they said were symptoms of Long QT. Welcome to the group.

Becca-www.blesselliesheart.blogspot.com