Attention adult CHD patients!

[bopeesdad]

Hello,

My name is John Nielsen and I'm the Adult Liason for IHH, and I'm in need of your assistance! If you, or any adult you know, have a CHD and would like to talk to and provide and/or receive support from other adults who live with CHD, please contact me. It's estimated that there are housands of adults living with CHD that currently are not seeing a doctor either because they don't know a clinic is available or don't know where to turn for assistance and support. Please, if you or someone you know is one of these people, contact me so we can begin a process of informing, fellowshipping, and healing.

Thanks,
John

[Tiff-BAV,AS,PDA]

Hello John,
This is so great that you just posted this. I was about to post something asking to connect with some of the adult members of IHH. My name is Tiffany and I was diagnosed shortly after birth with a Bicuspid Aortic Valve, Aortic Stenosis, a PDA, and Aortic Dilation. I have had multiple surgeries and am doing well at the moment. I am more than happy to provide support/answer questions for anyone that might have them. However, I also would love to be able to get some advice from some of the other adult members regarding how they cope with the major decisions of life such as marriage, and children in regards to their CHD. These are questions that have been on my mind a lot lately. Please feel free to contact me via email at Tiffafy@Hotmail.com, or give me a call at (801) 941-2728
Thanks again,
Tiff Wardle :)

[momof2gr8kidz]

I was also born with a CHD a had a complete av canal repair with mitro valve repair and aortic stenosis recently. I also have a daughter with the same deffect. If any one has any questions feel free to email me. Nicladolar@yahoo.com